Adaptation process and occupational performance of mothers of children with autism spectrum disorders
DOI:
https://doi.org/10.1590/2526-8910.ctoAO252633041Keywords:
Psychological Adaptation, Role Playing, Mothers, AutismAbstract
Introduction: Adapting to a child with Autism Spectrum Disorder (ASD) can impact the occupational performance of mothers because of the care they demand, which can lead to difficulties in carrying out their occupations. Objective: To investigate the occupational performance and adaptation of mothers to their children with ASD. Method: Cross-sectional, descriptive, quantitative and qualitative study conducted with 11 mothers of children with ASD aged 2-9 years. Data were collected using the Parental Disability Adaptation Scale (EPAD) and the Canadian Occupational Performance Measure (COPM). EPAD data were analyzed by adding the scores of each participant and calculating the general average, whereas COPM data were analyzed from the values assigned to performance and satisfaction. Results: The mothers were well adapted to their children; however, they evaluated the presence of functional problems for occupational performance after their birth. Functional problems in the productivity category, specifically in work performance due to the demands of caring for the children, were mentioned by most mothers. In the self-care category, some mothers reported problems going to the salon and taking a shower. In the leisure category, some mothers indicated problems with reading, physical activity, traveling and/or visiting friends. Conclusion: The mothers in this study reported that adapting to their children with ASD involves factors such as transmission of the diagnosis, information, characteristics of the children, socioeconomic conditions, resilience, and personal beliefs and expectations. In conclusion, the mothers of children with ASD investigated presented functional problems regarding their occupational performance after the birth of these children.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2023 Brazilian Journal of Occupational Therapy
This work is licensed under a Creative Commons Attribution 4.0 International License.
The “Statement of Responsibility, Copyright and License Agreement” according to the model below must be signed by all the authors and sent during the article submission.
Statement of Responsibility, Copyright and License Agreement
Submission date:
Paper’s Title:
I, the undersigned, hereby certify that:
I participated in the conception of the paper and make public my responsibility for its content.
- All information concerning any source of funding received for the development of this research has been properly disclosed and made available to the editors during the submission.
- There were no connections or agreements between authors and funding sources that constitute any conflict of interest, potential or apparent, that may affect the results of the research.
- If experiments with human or animal subjects were involved all ethical procedures were followed and approved by an Institutional Review Board and that informed consent has been collected and archived when necessary, and the dissemination of images was authorized and I assume full responsibility for it.
- That the manuscript is original and that the research is not in part nor in whole currently submitted to another periodical, either in print or in an electronic format, nor is any other material of my authorship with substantially similar content so submitted.
- If requested, I will provide and cooperate fully in obtaining and providing data on which this text is based, for the editors’ examination.
- I have read and agreed with the terms of the Open Access and License Creative Commons Attribution (CC-BY), available at: http://creativecommons.org/licenses/by/4.0/
Authors’ full names and signatures list: