Complex chronic health conditions in childhood and social vulnerability: a literature mapping review

Abstract

Introduction: The definition of children with complex chronic health conditions (CCHCC) involves dependence on specialized care, rehabilitation, highly technological life support, and the involvement of multiple systems. Among the limitations imposed by the chronic condition, CCHCC and their families experience challenges arising from the vulnerable context in which many families find themselves, consequently leading to difficulties in accessing healthcare services, compromising the family’s well-being. The influence of the social context on the lives of CCHCC is still rarely discussed. Objective: This study investigates what has been discussed in national and international literature regarding the influences of social vulnerability on the lives of CCHCC and their families. Method: This is a mapping literature review that used a descriptive analysis of the material found in the SciELO, Web of Science, PubMed, and Virtual Health Library databases, as well as Brazilian occupational therapy journals. Results: Eighteen studies were found that, although they did not examine CCHCC and social vulnerability together, contribute to the discussion on the importance of considering the social context in which these children and their families live. Conclusion: The mapping highlights the lack of materials linking CCHCC and vulnerability; however, it discusses the burden on mothers, the difficulties in accessing technological resources, and the influence of the context on the child’s development and involvement in essential occupations, leading us to understand that social vulnerability can indeed impact the daily lives of these children and their families, underscoring the need to invest in more holistic approaches.